Ok so i know i have not written a blog lately but here is what has happened.
Many of you know that i have a rare disease called Friedreich's Ataxia that is a
neuromuscular disease which means that its only going to get worse. It affects
my balance and i have....well....had scoliosis and i also have a heart disease
called hypotrophic cardiomyopathy.
The scoliosis made me lean to one side and because i had a very bad curve it was
a 64 degree curve they said i needed spinal fusion surgery. I have tried to
avoid it for so long and i couldn’t avoid it any longer. They scheduled it for
july 31 2010 but i would have to go in on july 30 to get settled in and then i
would have to go in to surgery @ 8:00 AM on july31.
First they put iv’s in me about 5:30 am, then they gave me medicine to go to
sleep and then i would not go to sleep so they gave me a stronger medicine. My
parents prayed for me and i fell asleep right after that. They took me back and
when they put me on the operating table i woke up and said ya’ll said i was
going to be asleep! why am i not asleep! They said to lay down and close my
eye’s so i did and i fell asleep.
The doctors took 2 metal rods and 13 screws and straightened my spine. They
placed 1 on each side of my spine and an then screwed them together and a’ll i
remember is waking up and it being so dark and screaming where’s my where’s my
mom??? I remember hearing a voice saying i am right here you are ok and the
first thing i noticed was that i could breath a lot better.
On the 2nd day i had to get up and sit in a big chair and then on about the 5
day i got up and walked with a walker. In the hospital i had so much fun with my
siblings we played the wii together. 4 people playing the wii you can imagine
how that went LOL…….. and playing basketball. ok i beat the most athletic
person in our family Naomi and she plays basketball!! lol of course it was the
one where you stand in 1 spot and throw the basketball’s into a hoop. I also
had a therapist named Hun she was very nice.
I left the hospital 12 days later and i came home walking with a walker Amanda
Dreama and Mike all came to the hospital to help us bring our stuff home because
I had so much stuff and then they came to the house and visited for a while.
Dreama and mike left and Amanda stayed. Then Luke and Katelynn came over and
stayed and Gina Trace and Faith and Grace Emory came. and visited and i got to
hold Emory she is so precious. And then everybody left they dropped mana off @
That Monday I went to Physical Therapy to get Evaluated so i could start doing
PT. Well i went to PT on Tuesday and thee fun began for you that don’t know i
like to be sarcastic with Aaron which is my therapist he is so fun!! We do all
these laying down exercise’s an then we do the total gym and the nu step and the
pulley’s and throwing a big ball over my head. I have to go to Physical Therapy
every singe day @ 2:00 and oh if your reading this Aaron John is still my
favorite therapist LOL.!.! And today i am walking without a walker 🙂
I’ll write about the rest of my time home in the next post…..