I am so excited for march to start its gonna be a busy month but a great month!!! we have 2 archery competitions and we have soccer practice every monday tuesday and thursday and co-op every friday ( co-op is something all of the home schoolers do we do computer class writing class science class an biology ) And we still have school all through the week……… And we have just 2 regular archery practice. On march 17 my friends the vandurbergs the napps and the waggners are putting on a poker run to help raise money for the bike ride they put one on every year and the money goes towards the friedreichs ataxia research alliance to help find a cure for friedreichs ataxia 🙂 and on march 23 me and my friends will ride our bikes in the ride ataxia i am so looking forward to it. 🙂 I
Today I woke up my hair was horrible I repeat horrible!!! It was oily any way so I took a shower washed my gross hair and got dressed. Ate frosted flake’s and we have a bible study every morning we have been studying in proverbs this morning we studied in proverbs 19: 1. And then I did school and I cant wait til tonight i am staying the night with my aunt Lisa! 🙂
Ok so i know i have not written a blog lately but here is what has happened.
Many of you know that i have a rare disease called Friedreich's Ataxia that is a
neuromuscular disease which means that its only going to get worse. It affects
my balance and i have....well....had scoliosis and i also have a heart disease
called hypotrophic cardiomyopathy.
The scoliosis made me lean to one side and because i had a very bad curve it was
a 64 degree curve they said i needed spinal fusion surgery. I have tried to
avoid it for so long and i couldn’t avoid it any longer. They scheduled it for
july 31 2010 but i would have to go in on july 30 to get settled in and then i
would have to go in to surgery @ 8:00 AM on july31.
First they put iv’s in me about 5:30 am, then they gave me medicine to go to
sleep and then i would not go to sleep so they gave me a stronger medicine. My
parents prayed for me and i fell asleep right after that. They took me back and
when they put me on the operating table i woke up and said ya’ll said i was
going to be asleep! why am i not asleep! They said to lay down and close my
eye’s so i did and i fell asleep.
The doctors took 2 metal rods and 13 screws and straightened my spine. They
placed 1 on each side of my spine and an then screwed them together and a’ll i
remember is waking up and it being so dark and screaming where’s my where’s my
mom??? I remember hearing a voice saying i am right here you are ok and the
first thing i noticed was that i could breath a lot better.
On the 2nd day i had to get up and sit in a big chair and then on about the 5
day i got up and walked with a walker. In the hospital i had so much fun with my
siblings we played the wii together. 4 people playing the wii you can imagine
how that went LOL…….. and playing basketball. ok i beat the most athletic
person in our family Naomi and she plays basketball!! lol of course it was the
one where you stand in 1 spot and throw the basketball’s into a hoop. I also
had a therapist named Hun she was very nice.
I left the hospital 12 days later and i came home walking with a walker Amanda
Dreama and Mike all came to the hospital to help us bring our stuff home because
I had so much stuff and then they came to the house and visited for a while.
Dreama and mike left and Amanda stayed. Then Luke and Katelynn came over and
stayed and Gina Trace and Faith and Grace Emory came. and visited and i got to
hold Emory she is so precious. And then everybody left they dropped mana off @
That Monday I went to Physical Therapy to get Evaluated so i could start doing
PT. Well i went to PT on Tuesday and thee fun began for you that don’t know i
like to be sarcastic with Aaron which is my therapist he is so fun!! We do all
these laying down exercise’s an then we do the total gym and the nu step and the
pulley’s and throwing a big ball over my head. I have to go to Physical Therapy
every singe day @ 2:00 and oh if your reading this Aaron John is still my
favorite therapist LOL.!.! And today i am walking without a walker 🙂
I’ll write about the rest of my time home in the next post…..
Okay so friday was a party benefit for my family to raise money for my spinal fusion surgery scheduled for July 31 i am ready to get it over with but i am not looking forward to it. So anyway at the party on Friday at floors 4 U they did a raffle. they raffled off a area rug and a blender and coupon for one Free year at complete fitness and iPad 3. Okay so I was drawing the name for the winner’s. Okay so i was drawing the first one the the name for the winner for the blender and guess who’s name i drew NOAH NEWMAN in case ya’ll don’t know he is my brother and then I drew the name for the coupon to complete fitness guess who’s name i drawled this time NATHAN NEWMAN LOL……. he is my little brother so Noah has a blender and Nathan has a coupon for complete fitness. and then I drew for the area rug and i drew someone that I don’t know so ya. And I drew for the iPad 3 and guess who got that i drew Britney Sanford and she announced that she had already told Abdel that if she won the iPad 3 she would give it to guess who if you guess me Natalie Newman you are right I was so excited she gave me the iPad 3 that she won oh and by the way the food there was amazing. And then on Sunday at 5:30 PM we went to my Nana church and they had another party to help raise money for my surgery on July 31 it was so fun there was a lot of people there and they had a jump house 2 water slides and a dunking booth and diffrent kinds of games and there was a boy there that walked up and gave me all his birthday money it was like $250 his name was covy and he was 12 years old he was so sweet and i had to give a short speech and we ate hot dogs and my awesome cousin DJ sang Christian rap you should look him up on itunes search true disciple transformation and then the pastor preached for about 5 min and then brother steve announced that they raised $2,500 it was amazing and a huge blessing it was fun to well i guess ill talk to you later bye!!
WOW!! Today was an awesome day!! First well last night I went house sitting with my aunt Delores and we stayed the night there with my aunt Delores. And this morning me and my aunt went and had breakfast and I got hash browns a omelet, a piece of bacon and toast. My aunt had 2 pancakes and bacon :). Then I went to miss Genie’s house and we tried to crack the recipe for spice tea at the tea room. We got pretty close but we didn’t crack it. 😦 all well we will keep trying to crack it LOL………. Then we went to the tea room and ate lunch. yummy yum!! It was so good!! Thank u Genie and then we went and got some beads from the bead shop 🙂 to make a necklace. I made and it is so cute! It’s a purple one I love it. Then Naomi and Mom went to soccer practice and I stayed here with Nathan and Naya and we watched Jeremy Fink. It’s good. They got home and we ate dinner and watching a movie right now so I got to go!!
Bye thanks for reading my blog comment if u have time
Ok so the other day I found out when I was having my Spinal Fusion surgery on July 31 or if someone calls and says they can’t make it to their surgery next week or something if they call cancel I will take their place so really I don’t know when I am going to have my surgery so for all I know is that I could have my surgery next week!!!. I am very nervous but I know that God is in control and I know that when I have surgery it might take a very long time to recover but I will do what ever it takes to recover of course u might see me walking with some kind of walker so I wont fall 😦 cant wait to get it over with but I don’t want it to happen if u know what I mean I want to get it over with but I don’t want to be in all that pain u know but I will be on meds to help the pain I don’t know I am just very nervous. oh and I got to eat at the tea room with my aunt D it was awesome!!
well thanks for reading commet please I like reading comments
this past weekend we had the ride ataxia in Dallas to raise money and awareness to find a cure for F.A. and all together we raised over 70,000 dollars but my team Natalie team hope riders raised over 6,000 dollars i got to ride my cat trike its a awesome bike look bellow this post